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Full Resource Name:

National Organization for Rare Disorders

Address

55 Kenosia Ave
Danbury, CT 06810

(800) 999-6673

www.rarediseases.org

Click here to hide the map.

AKA:

NORD / Medication Assistance Programs

Description:

NORD is a Voluntary Health Organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them through programs of education, advocacy, research and medication assistance. The organization provides this information for the benefit of the rare disease community, but it does need the specific diagnosis. NORD is not a medical provider or health care facility, and, thus, can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

Program Fees:

You can print up to two disease reports per day at no charge.

Languages:

English and Spanish

Is Shelter?

No

Related Resource

BOCC Charlotte 211 Call Center (Gov't)

Date of Official Change:

May 25, 2017

Geographies Served

  • Serves All Areas

Address Listings

Mailing

55 Kenosia Ave
Danbury, CT 06810

Physical (Primary)

55 Kenosia Ave
Danbury, CT 06810

Contacts

Nancy Nadig

Primary Contact

Administrative Assistant

nnadig@rarediseases.org

Phone Numbers

Patient Services Representatives

(800) 999-6673

Fax

(203) 263-9938

National Headquarters

(203) 744-0100

Spanish Line

(844) 259-7178

Services

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Disease/Disability Information

Description

NORD is a Voluntary Health Organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them through programs of education, advocacy, research and medication assistance. The organization provides this information for the benefit of the rare disease community, but it does need the specific diagnosis. NORD is not a medical provider or health care facility, and, thus, can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

Hours

Call Center hours: 9AM - 7PM Monday to Thursday; 9AM - 6PM Friday 9AM - 5PM Monday to Friday (office)

Eligibility

Anyone in the "rare disease" community, including patients, families, medical professionals and others.

Fees

You can print up to two diseases reports per day at no charge.

Intake Procedure

Call or go online

Languages

English and Spanish

Offered Outside of Physical Location

Yes

Geography Served

    If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.

    Serves all areas

Telephone Numbers

Number:
800-999-6673
Name:
Patient Services Representatives
Number:
844-259-7178
Name:
Spanish Line
Edit Service DetailsClick here to see this service (LH-2700.1700) and related services within the Service Tree.
Prescription Drug Patient Assistance Programs

Special Notes/Funding

NORD has specific assistance programs based on the patient's condition. Call or check the website for more information, including program availability/capacity.

Description

NORD is a Voluntary Health Organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them through programs of education, advocacy, research and medication assistance. The organization provides this information for the benefit of the rare disease community, but it does need the specific diagnosis. NORD is not a medical provider or health care facility, and, thus, can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

Hours

Call Center hours: 9AM - 7PM Monday to Thursday; 9AM - 6PM Friday 9AM - 5PM Monday to Friday (office)

Eligibility

Anyone in the "rare disease" community, including patients, families, medical professionals and others.

Fees

You can print up to two diseases reports per day at no charge.

Intake Procedure

Call or go online

Languages

English and Spanish

Offered Outside of Physical Location

Yes

Geography Served

    If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.

    Serves all areas

Telephone Numbers

Number:
800-999-6673
Name:
Patient Services Representatives
Number:
844-259-7178
Name:
Spanish Line
Edit Service DetailsClick here to see this service (LH-6700.6300) and related services within the Service Tree.
Specialized Information and Referral

Description

NORD is a Voluntary Health Organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them through programs of education, advocacy, research and medication assistance. The organization provides this information for the benefit of the rare disease community, but it does need the specific diagnosis. NORD is not a medical provider or health care facility, and, thus, can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

Hours

Call Center hours: 9AM - 7PM Monday to Thursday; 9AM - 6PM Friday 9AM - 5PM Monday to Friday (office)

Eligibility

Anyone in the "rare disease" community, including patients, families, medical professionals and others.

Fees

You can print up to two diseases reports per day at no charge.

Intake Procedure

Call or go online

Languages

English and Spanish

Offered Outside of Physical Location

Yes

Geography Served

    If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.

    Serves all areas

Telephone Numbers

Number:
800-999-6673
Name:
Patient Services Representatives
Number:
844-259-7178
Name:
Spanish Line
Edit Service DetailsClick here to see this service (TJ-3000.8000) and related services within the Service Tree.
Voluntary Health Organizations

Description

NORD is a Voluntary Health Organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them through programs of education, advocacy, research and medication assistance. The organization provides this information for the benefit of the rare disease community, but it does need the specific diagnosis. NORD is not a medical provider or health care facility, and, thus, can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

Hours

Call Center hours: 9AM - 7PM Monday to Thursday; 9AM - 6PM Friday 9AM - 5PM Monday to Friday (office)

Eligibility

Anyone in the "rare disease" community, including patients, families, medical professionals and others.

Fees

You can print up to two diseases reports per day at no charge.

Intake Procedure

Call or go online

Languages

English and Spanish

Offered Outside of Physical Location

Yes

Geography Served

    If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.

    Serves all areas

Telephone Numbers

Number:
800-999-6673
Name:
Patient Services Representatives
Number:
844-259-7178
Name:
Spanish Line
Edit Service DetailsClick here to see this service (TD-1200.6600-900) and related services within the Service Tree.